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Onabotulinumtoxin type A improves lower urinary tract symptoms and quality of life in patients with human T cell lymphotropic virus type 1 associated overactive bladder

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w w w . e l s e v i e r . c o m / l o c a t e / b j i d

The

Brazilian

Journal

of

INFECTIOUS

DISEASES

Original

article

Onabotulinumtoxin

type

A

improves

lower

urinary

tract

symptoms

and

quality

of

life

in

patients

with

human

T

cell

lymphotropic

virus

type

1

associated

overactive

bladder

Jose

Abraão

Carneiro

Neto

a,b

,

Silvane

Braga

Santos

b,c

,

Gloria

Orge

Orge

b

,

Davi

Tanajura

a

,

Lucia

Passos

b

,

Cassius

José

Oliveira

a

,

Rosana

Andrade

a

,

Cláudio

Galeno

de

Melo

d

,

Ubirajara

Barroso

Jr

d

,

Edgar

M.

Carvalho

d,e,f,∗

aUniversidadeFederaldaBahia(UFBA),ProgramadePós-Graduac¸ãoemCiênciasdaSaúde,Salvador,BA,Brazil

bUniversidadeFederaldaBahia(UFBA),HospitalUniversitárioProf.EdgardSantos,Servic¸odeImunologia,Salvador,BA,Brazil cUniversidadeEstadualdeFeiradeSantana,FeiradeSantana,BA,Brazil

dUniversidadeFederaldaBahia(UFBA),HospitalUniversitárioProf.EdgardSantos,Servic¸odeUrologia,Salvador,BA,Brazil eFiocruzBahia,InstitutoGonc¸aloMoniz,LaboratóriodePesquisaClínica,Salvador,BA,Brazil

fInstitutoNacionaldeCiênciaeTecnologiadeDoenc¸asTropicais(INCT-DT),Salvador,BA,Brazil

a

r

t

i

c

l

e

i

n

f

o

Articlehistory:

Received2August2017 Accepted30October2017 Availableonline17February2018

Keywords:

Overactivebladder Onabotulinumtoxin HTLV-1

a

b

s

t

r

a

c

t

Aim: ToevaluatetheefficacyoftheonabotulinumtoxintypeAinthetreatmentofHTLV-1 associatedoveractivebladderanditsimpactonqualityoflife(QoL).

Methods:Caseserieswith10patientswithoveractivebladderrefractorytoconservative treatmentwithanticholinergicorphysicaltherapy.Theyreceived200Uiof onabotulinum-toxin type A intravesically and were evaluated by overactivebladder symptoms score (OABSS)andKing’sHealthQuestionnaire.

Results:Themean(SD)oftheagewas52+14.5yearsand60%werefemale.Allofthemhad confirmeddetrusoroveractivityonurodynamicstudy.SevenpatientshadHAM/TSP.The medianandrangeoftheOABSSwas13(12–15)beforetherapyanddecreasedto1.0(0–12) onday30andto03(0–14)onday90(p<0.0001).Therewasasignificantimprovementin8of the9domainsoftheKing’sHealthQuestionnaireaftertheintervention.Hematuria,urinary retentionandurinaryinfectionwerethecomplicationsobservedin3outof10patients.The meantimetorequestretreatmentwas465days.

Conclusion: OnabotulinumtoxintypeAintravesicallyreducedtheOABSSwithlastlongeffect andimprovedthequalityoflifeofHTLV-1infectedpatientswithsevereoveractivebladder. ©2018SociedadeBrasileiradeInfectologia.PublishedbyElsevierEditoraLtda.Thisisan openaccessarticleundertheCCBY-NC-NDlicense(http://creativecommons.org/licenses/ by-nc-nd/4.0/).

Correspondingauthor.

E-mailaddress:[email protected](E.M.Carvalho). https://doi.org/10.1016/j.bjid.2017.10.009

1413-8670/©2018SociedadeBrasileiradeInfectologia.PublishedbyElsevierEditoraLtda.ThisisanopenaccessarticleundertheCC BY-NC-NDlicense(http://creativecommons.org/licenses/by-nc-nd/4.0/).

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Introduction

ThehumanT cell lymphotropic virus type1is the causal agentofthe HTLV-1-associatedmyelopathy/tropicalspastic paraparesis(HAM/TSP).About10millionpeopleareinfected by HTLV-1 worldwide.1 HAM/TSP is characterized by back

pain,hyperreflexia,spasticparaparesis, andBabinskisign.2

Manifestationsofthegenitourinarysystemsuchaserectile dysfunction,increasedurinaryfrequencyandurgency,with or without incontinence, and nocturia are documented in virtuallyallpatientswithHAM/TSP.3–5Moreover,these

man-ifestationsmaybedetectedinalargepercentageofHTLV-1 subjects who do not fulfill criteria forHAM/TSP.5 The

uri-narycomplaints are responsible forserious impairment of quality of life, development of depression, and increased risk for upperurinary tract infection and kidney dysfunc-tionduetoincreasedintravesicalpressureandresidualurine volume.6–8 Themainurodynamicfindings inpatients with

urinarydysfunctionassociatedwithHTLV-1areoveractivity ofthedetrusor,sphincter-detrusordyssynergia,andimpaired bladdercontractility.8,9 Asonlyfewstudies haveaddressed

thetreatmentofsuchevents inthis population,itremains undefinedifthetherapeuticinterventionsusedinindividuals notinfectedwithHTLV-1havethesame responseinthose infectedbythevirus.TheonabotulinumtoxintypeAhasbeen usedwithsuccesstoimproveurinarysymptomsinpatients withoveractivebladdersymptomsduetomultiplesclerosisor spinalcordinjury.10,11 Wehadpreviouslyshowninalimited

numberofpatientswithurologicdysfunctionstheshort-term resultsoftheuseofonabotulinumtoxin.12Hereweextendthis

observationtoalargenumber ofpatients, besides evaluat-ingthelong-termtherapeuticresponsetoonabotulinumtoxin type A in HTLV-1 infected patients with overactive blad-derrefractorytoconservativetreatmentwithanticholinergic drugsorphysicaltherapy.

Theaimofthisstudywastodeterminetheeffectof onabo-tulinumtoxintypeAincontrollingsymptomsoflowerurinary tractinpatientsinfectedwithHTLV-1refractoryto conserva-tivetreatmentwithanticholinergicandpelvicfloorphysical therapy associated with parasacral or intracavitary neuro-modulation(vaginaloranal).

Methods

Patientsandcasedefinitions

Participantsofthestudywereselectedfromacohortstudy of 419 HTLV-1 infected subjects, of whom, 142 presented urinarysymptoms.Eighty-sixpatientswereonconservative treatmentforHTLV-1associatedoveractivebladder,34were notreceiving regular treatment and 22 of thesewere con-sidered refractory todrug therapy. Overactive bladder was definedaccording toInternationalContinence Society (ICS) criteria13 and refractory overactivebladder was defined as

failuretocontrolurgencyandincontinenceusingtwo differ-entanticholinergicdrugsinmaximaltolerateddosage.14–16All

patientsunderwentanurodynamicstudydonebefore treat-ment.

ThediagnosisofHAM/TSPandprobableHAM/TSPwas per-formedaccordingtoDeCastroCostacriteria.17Patientswith

probable HAM/TSP had urologic dysfunctions as the main symptoms.Theamountofonabotulinumtoxinavailablewas enoughforonly10patientsandthefirst10caseswhoagreedto usetheonabotulinumtoxintypeAwereenrolledinthestudy.

AdministrationofonabotulinumtoxintypeA

Patientswere anesthetizedandpositionedinlithotomy.All patientswereonfluoroquinoloneantibioticprophylaxis.They receivedspinalorgeneralanesthesiaand20mLoflidocaine gelintotheurethra.OnabotulinumtoxintypeA(Botox®, Aller-gan,Inc.,Irvine,CA)waspreparedaccordingtothefabricant recommendation: Astandard dose of 200UI was reconsti-tuted in30mLofNaCl 0.9%solution. Then,the medication wasinjectedinthedetrusormusclebycystoscopyin30 dif-ferentpointsofthesupratrigonalregion.Onemilliliterofthe solutionwasadministeredineachsiteofapplication.18

Thechoiceof200UIdosewasbasedinapreviousstudyby Cruzetal.whoshowedthatdosetohavethesameefficacyof 300UIinpatientswithurinaryincontinenceduetodetrusor overactivity.

Clinicalevaluation

The efficacy of the onabotulinumtoxin type A in control-ling overactive bladder symptoms inHTLV-1 patients were assessedbya3-dayvoidingdiaryandbytheoveractive blad-dersymptomscore(OABSS).Theseparameterswereassessed pre-andpost-treatment.Moreover,patientswereevaluated after30,90and365daysafterthetherapeuticintervention. TheimpactonqualityoflifewasmeasuredusingtheKing’s HealthQuestionnaire.19Weconsideredahighpostvoid

vol-umeasover50%oftheestimatedbladdercapacity(400mL), aspreviouslyestablishedbyAsimakopoulosetal.20

Statisticsanalysis

The demographics and clinical data are described as mean±standard deviation (SD) or median (range). The Wilcoxonpairedtestwasappliedtocomparepre-and post-intervention changes in frequency of voiding symptoms, OABSSandKing’sHealthQuestionnaire.p-Values<0.05were consideredstatisticallysignificant.

Results

Table 1 summarizes demographic and clinical features of patientsundergoingtreatmentwithonabotulinumtoxintype A.Allofthemhadalreadyusedatleasttwoanticholinergic drugs(oxybutyninandpropanthelinebromide),givenorallyin fulltolerateddosage.Ofthe10participantsofthestudy,three hadreceivedinadditiontooral,intravesicaloxybutynin,but remainedwithurgeincontinence.Twocasesalsohadphysical therapywithsacral,vaginalortrans-analelectrical stimula-tionwithnoimprovement.Themajorityofthepatientshad illnessdurationforalongperiod.Detrusoroveractivitywas

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Table1–Demographic,urodynamicandcystoscopic dataofpatientswithrefractoryoveractivebladder infectedwithHTLV-1undergoingtreatmentwith onabotulinumtoxintypeA.

Demographicandclinicaldata

Age(mean±SD) 52±14.5

Gender

Male:female 4:6

Durationofdisease–years(mean±SD) 7±4.2 Starttimeoftreatment–years

(mean±SD)

6±3.0

Numberofdrugsused(mean±SD) 2±0.5

Urodynamicfindings

Detrusoroveractivity 10

Impairedcontractilityduringthe voidingphaseofurodynamicstudy

7

Acontractilebladder(voidingphase) 5

Bladderemptyingmode

Self-intermittentcatheterization 6 Credémaneuver 1 Cystoscopy Trabeculations 10 Diverticulum 7 Neurologicstatus HAM/TSP 7 ProbableHAM/TSP 3 EDSS(mean±SD) 5±2 Osame(mean±SD) 5±3.5

observedinall patientsbeforetherapy.Bladderempty dys-functionwas detectedinsevenpatients. Five ofthem had acontractile detrusor documented and six performed self-intermittentcatheterization.Themajorityofthesepatients (n=04)hadHAM/TSP,butinthreecasesurinarydysfunctions were the mainneurologic symptoms. Theimpact of treat-mentonurologicalsymptomsandOABSSafter30daysand90 daysofthetherapeuticinterventionisshowninTable2.After applicationofonabotulinumtoxintypeA,therewasa signifi-cantreductioninthefrequency(p=0.008),urgency(p=0.007) andnocturia (p=0.008). Inaddition, therewasasignificant

reductionofOABSSmeasured30,90and365daysafterthe applicationofonabotulinumtoxin(p<0.005).Nosurgical com-plicationwasobservedduringtheintraoperativeperiod.Three outof10patientspresentedcomplicationsdetectedafter ther-apycharacterizedbyurinarytractinfection andhematuria. Urinaryretentionwereobservedintwoofthesepatientswho were abletovoid spontaneouslybeforetreatmentthat per-sisted for31 and 65 daysafter therapy. In all three cases, theinfectionwasinthelowerurinarytractandthepatients responded promptly to ciprofloxacin. Inpatients who pre-sented hematuria the symptoms disappeared within two days.Thosepatientswhodevelopedurinaryretentionneeded touseself-intermittentcatheterization.Despitebeingableto voidspontaneouslybeforetherapy,thesepatientshad high voidresidualvolume.

Table3showstheimpactofthetreatmentonQoL.Ofthe ninedomainscomprisedintheKing’sHealthQuestionnaire,a statisticallysignificantreductionwasdemonstratedineightof them.Regardingthegeneralhealthperception,thestatistical significancewasnotachievedbutthep-valuewas0.05.

Thedurationofthetreatmenteffectwasassessedby sur-vivalanalysisandexpressedinaKaplan–Meiercurve(Fig.1). Theaveragetimeforrequiringretreatmentorreturningtothe previoustreatmentOABSSwas465.7±66.3days(Fig.1).

Discussion

Urinarytractdysfunction(UD)playsanimportantroleinthe morbidityrelatedtoHTLV-1infection.5,8,21,22Initially, itwas thoughtthaturinarysymptomswerecausedbyurinarytract infection,butonestudyfailedtoprovethishypothesis,and OABsymptomsareinfactduetoneurologicaldisease.8,23,24

Althoughseveralstudieshaveinvestigatedthe physiopathol-ogy of UD, there are few studies assessing the efficacy of therapeuticstrategiesinHTLV-1infectedsubjects.Inthisopen label clinical study,we assessedthe long-termtherapeutic responseofHTLV-1infectedsubjectstoonabotulinumtoxin type A. Thisdrug was able tocontrol the OAB symptoms,

Table2–ImpactoftreatmentwithonabotulinumtoxintypeAonOABSSaandcomplicationsin10HTLV-1binfected patientswithoveractivebladderrefractorytoconservativetreatment.

Beforetreatment 30daysaftertreatment 90daysaftertreatment pvaluec

Frequency(median–range) 10.0(4–20) 1.0(0–12) 4(3–8) 0.00

Urgency(median–range) 5.0(3–20) 0.0(0–4) 1(0–5) 0.00

Nocturia(median–range) 5.5(2–15) 1.0(0–4) 1(0–5) 0.00

OABSS(median–range) 13.0(12–15) 1.0(0–12) 3.0(0–14) 0.00

Hospitalization(meandays) 3.8

Numberofpatientswithcomplications

Urinarytractinfectiond 03cases

Hematuriad 03cases

Retention 02cases

a Overactivebladdersymptomscore. b HumanTcelllymphotropicvirustype1. c Wilcoxontestforpairedsamples.

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Table3–ImpactofonabotulinumtoxintypeAtreatmentinqualityoflifeevaluatedbyKing’sHealthQuestionnaire.

Domain King’sHealthQuestionnairescore pvaluea

Beforeintervention(mean±SD) Postintervention(mean±SD)

Generalhealthperception 55.5(30.0) 28.1(20.8) 0.05

Incontinenceimpact 81.5(33.8) 33.3(43.6) 0.04

Dailyactivitieslimitations 81.5(29.4) 22.9(35.6) 0.01

Physicallimitations 72.2(34.3) 14.3(26.2) 0.02 Sociallimitations 61.7(28.4) 11.1(27.2) 0.01 Personalrelationship 83.3(28.9) 8.3(20.4) 0.03 Emotions 82.7(20.1) 19.4(32.4) 0.01 Sleep/energy 82.7(20.11) 18.7(27.4) 0.01 Severitymeasures 80.4(19.2) 16.7(35.6) 0.01

a Wilcoxonsigntest(Wicoxonsignedranktest).

Fig.1–Kaplan–Meiercurve.SurvivalanalysisinHTLV-1 infectedpatientswithrefractoryoveractivebladder submittedtointravesicalapplicationofonabotulinumtoxin A.Timetorequestretreatmentortoreturntoprevious treatmentOABSS.

mainlyurgencyandincontinenceforalongperiod(meanof 466days)andimprovedQoLofthepatients.

Thecasesenrolledinthisstudyhaveexperienced conser-vativetreatmentforameanperiodofsixyearsandhadnot achievedtotalcontrolofthesymptoms.Inadditiontotheuse ofmorethanonedrugorally,intravesicaltherapyhadbeen appliedintwopatients.Althoughsevenpatientshad impair-mentofdetrusorcontractility,wepreferredtouseastandard doseoftheonabotulinumtoxintypeAinallpatients(200UI), asrecommendedbyCruzetal.10

In the present study, OABSS was used to measure the OAB severity. This score evaluatesthe main symptoms of OAB giving different weights for each question related to thesymptoms.Therefore,urgencyandincontinencetranslate intomorepointsinthe scorethan frequencyand nocturia. Thisscorewasalsoappliedinarandomizedcontrolledtrial evaluating onabotulinumtoxin A in patients with multiple sclerosis.10 Ourdata show asignificant decrease ofOABSS

inall periodsofevaluation afterthe applicationof onabo-tulinumtoxintypeA,whichpersistedforalongtime(Fig.1). Thetimeforretreatmentofthepatientswashigherthan pre-viouslydocumented25 and severalfactors mayexplainthis

finding.Itisknownthattheresponsetointravesicalinjections

ofonabotulinumtoxintypeAisquitevariableanddependent ontheneurologicaldiseaserelatedtourinarydysfunction.26

Moreover, we only offered retreatment when the patients requesteditorwhentheypresentedthesameorhigherOABSS comparedtothescoreobservedbeforetherapy.

UTI,hematuriaandurinaryretentionwerethemost com-moncomplications,buttheirfrequenciesweresimilartorates reported for patients withother neurologic diseases.10,27,28

Aspreviousreported,UTImayoccuraftertherapy.12,29 This

factmaybeexplainedbyurinecolonizationinpatientsusing self-intermittentcatheterizationduetohighvoidresidual vol-ume orbyendoscopictreatment.AnywayUTIisfrequently documentedinHTLV-1infectedpatients.Regarding urinary retention,thiscomplicationwasmorefrequentthantherate observed inother series.30 However,this wasa predictable

event,asallpatientswhopresentedurinaryretentionwere notvoidingnormally,astheyemptythebladderby involun-tarycontraction.Insuchcases,patientsshouldbeinformed thaturinaryretentionmaybeobservedaftertherapy.

Gotoh et al. foundeda directrelationship betweenOAB severity andimpairment onqualityoflife(QoL).Theyalso found that the symptoms with the highest bother score wasfrequencyandurgencyamongpatientsunder50years, urgency in the age range of 50–70year, and incontinence inthoseover80years.31Inourstudy,incontinencewasthe

symptom withthe highestimpact on QoL,but we didnot investigatebyagegroups.

Thelimitationsofthepresentstudyincludethesmall sam-plesize,theabsenceofacontrolgroup,andlackofcontinuity ofcareandtheimpossibilitytoapplyalltherapeutic arma-mentarium, such asposterior tibial stimulationand sacral neuromoduation.Also,wedidnotperformurodynamicstudy in the post-treatment evaluationfor ethical reasons. First, therewasnodoubtabouttheclinicalimprovementand sec-ond the conduction ofan urodynamic study by minimally invasivetechniquewasnotavailableinourservice.

Werecentlyshowedthatendocavitary(vaginalandanal) electrical stimulation combined with pelvic physiotherapy is an effective treatment of HTLV-1 associated urinary dysfunction.32 Herewe foundthatonabotulinumtoxintype

A promoted improvement in urinary symptoms and on QoL with acceptable rates of complications and may be usedinpatientsinfectedwithHTLV-1withurinary inconti-nence.

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Conclusion

OnabotulinumtoxintypeAshouldbeconsideredinthe treat-mentofoveractivebladderassociatedtoHTLV-1refractoryto anticholinergicdrugsandphysicaltherapy.

Conflicts

of

interest

Theauthorsdeclarenoconflictsofinterest.

Acknowledgment

ToCristianoFrancofortheassistanceinmanuscript transla-tionandrevision.

ToPauloLessaandMariaEmiliaPedreiraFreiredeCarvalho Foundation.

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