A literatura aponta diversos desafios para integrar a avaliação espiritual na prática clínica da Enfermagem, dentre eles a falta de tempo para o diálogo, a sobrecarga de trabalho, os turnos rápidos, a falta de continuidade do cuidado espiritual, os sentimentos de incompetência para reconhecer necessidades espirituais e promover intervenções, além da ausência de instrumentos adequados ao desenvolvimento de adolescentes, validados para mensurar a espiritualidade e religiosidade dessa população (COTTON; MCGRADY; ROSENTHAL, 2010; EDWARDS et al., 2010; RASSOULI et al., 2015). A disponibilidade de escalas, para avaliar o bem-estar espiritual em adolescentes com doença crônica no Brasil em que os resultados são autorreportados e reportados por um observador parental, será útil para obter mais detalhes sobre o bem-estar espiritual de adolescentes, apoiando enfermeiros e pesquisadores no planejamento e avaliação de intervenções que promovam o aumento dos níveis de bem-estar espiritual neste grupo.
Porque as versões adolescente e parental da escala FACIT-Sp-12 são curtas, levando em média três minutos para serem respondidas, e foram consideradas compreensíveis e relevantes pelos pais e adolescentes, elas podem ser incorporadas à prática clínica pelos enfermeiros para a avaliação do bem-estar espiritual. Além disso, seus itens podem nortear conversas sobre assuntos relativos à espiritualidade com os adolescentes, envolvendo seus pais e/ou cuidadores. Dessa forma, o cuidado integral de Enfermagem poderá ser prestado ao adolescente a partir da instrumentalização dos enfermeiros para conduzir uma avaliação do cuidado espiritual, inclusive com a possibilidade de considerar a perspectiva da família (pais ou cuidadores principais).
As versões adolescente e parental da escala FACIT-Sp-12 validadas poderão ser utilizadas para testar intervenções clínicas, explorando o constructo nessa população, por exemplo, a partir da avaliação dos níveis de bem-estar espiritual na perspectiva de adolescentes com diferentes condições crônicas e fases da doença ou de seus pais e/ou cuidadores, bem como avaliar os fatores que influenciam o nível de concordância entre eles.
9 CONCLUSÃO
"Oferecer assistência espiritual indica a verdadeira humanidade e o completo compromisso profissional de uma enfermeira."Conclusão
110 Os 12 itens da FACIT-Sp-12 foram adaptados para adolescentes brasileiros com doença crônica e foi desenvolvida uma versão parental para mensurar o bem-estar espiritual de adolescentes. As versões adolescente e parental mostraram validade de face, validade de conteúdo e validade convergente e níveis aceitáveis de consistência interna para a escala geral e o modelo de dois fatores. A validade de constructo discriminante lançou dúvida sobre o modelo de três fatores da FACIT-Sp-12 para adolescentes brasileiros, devido à falta de discriminação entre "Significado" e "Paz" em ambas as versões adolescente e parental. No entanto, estudos adicionais com amostras maiores de adolescentes e pais são necessários para confirmar a equivalência e validação de constructo das versões adolescente e parental da escala FACIT-Sp-12. Estudos futuros devem testar se as estruturas fatoriais das escalas consistem na estrutura psicométrica desenvolvimental de dois ou três fatores, pois ainda se desconhece se as dimensões são mensuradas semelhantemente à escala em adultos. A validação da medida para uso com adolescentes deve ainda ser explorada em relação à invariância da estrutura fatorial entre grupos etários e respondentes.
Nenhum efeito floor e ceiling foi observado nos escores de resposta das escalas. Uma correlação significativa e moderada foi observada entre as respostas na escala geral e na dimensão “Fé” da versão adolescente e parental. As dimensões “Significado” e “Paz” ou “Significado/Paz” mostraram uma significativa e fraca correlação. As escalas apresentaram ainda validade de grupos conhecidos, pois adolescentes praticantes de uma religião apresentaram maiores escores do que adolescentes não praticantes na dimensão “Fé” e na escala total para bem-estar espiritual. Similarmente, pais ou cuidadores praticantes de uma religião atribuíram maior escore para adolescentes na dimensão “Fé” e na escala total do que pais não praticantes de uma religião. Ambas as versões adolescente e parental diferenciaram significativamente os adolescentes diagnosticados com diabetes, fibrose cística e câncer. Estes grupos diferiram significativamente na dimensão "Fé", em ambas as versões. Adolescentes com câncer tiveram maior nível de bem-estar espiritual do que adolescentes com diabetes em ambas as versões. Similarmente, adolescentes com câncer mostraram mais fé do que adolescentes com diabetes, e pais de adolescentes com câncer atribuíram mais fé para seus adolescentes do que pais de adolescentes com outras condições.
Considerar a dimensão espiritual do paciente no planejamento do cuidado é parte das atribuições da Enfermagem. As duas escalas, versão adolescente e parental, da FACIT-Sp-12 para avaliar o bem-estar espiritual em adolescentes brasileiros com doença
Conclusão
111 crônica contribuirão para auxiliar a prática da enfermagem no oferecimento de um cuidado integral e humanizado.
REFERÊNCIAS
†Referências
113
ACQUADRO, C. et al. Incorporating the Patient’s Perspective into Drug Development and Communication: An Ad Hoc Task Force Report of the Patient-Reported Outcomes (PRO) Harmonization Group Meeting at the Food and Drug Administration, February 16, 2001. Value in Health, v. 6, n. 5, p. 522–531, set. 2003.
AGLI, O.; BAILLY, N.; FERRAND, C. Validation of the Functional Assessment of Chronic Illness Therapy—Spiritual Well-being (FACIT-Sp12) on French Old People. Journal of Religion and Health, v. 56, n. 2, p. 464–476, 2017.
ALEXANDRE, N. M. C.; COLUCI, M. Z. O. Content validity in the development and adaptation processes of measurement instruments. Ciência & Saúde Coletiva, v. 16, n. 7, p. 3061–3068, 2011.
ALVARENGA, W. DE A. et al. The possibilities and challenges in providing pediatric spiritual care. Journal of Child Health Care, v. 21, n. 4, p. 435–445, 2017.
AMADO, D. M.; BEAMON, D. A.; SHEEHAN, D. V. Linguistic validation of the pediatric versions of the sheehan suicidality tracking scale (S-STS). Innovations in Clinical Neuroscience, v. 11, n. 9–10, p. 141–163, 2014.
ANDO, M. et al. Bereavement life review improves spiritual well-being and ameliorates depression among American caregivers. Palliative and Supportive Care, v. 13, n. 2, p. 319–325, 2015.
ANDRADE, A. Using Fowler’s Faith Development Theory in Student Affairs Practice. College Student Affairs Leadership, v. 1, n. 2, 2014.
BALBONI, M. J.; PUCHALSKI, C. M.; PETEET, J. R. The relationship between medicine, spirituality and religion: three models for integration. Journal of religion and health, v. 53, n. 5, p. 1586–1598, 2014.
BEATON, D. E. et al. Guidelines for the Process of Cross-Cultural Adaptation of Self- Report Measures. Spine, v. 25, n. 24, p. 3186–3191, 2000.
BERCHTOLD, A. Test–retest: Agreement or reliability? Methodological Innovations, v. 9, p. 205979911667287, 2016.
BERK, R. A. Importance of Expert Judment in Content-Related Validity Evidence. Western Journal of Nursing Research, v. 12, n. 5, p. 659–671, 1990.
BJARNASON, D. Concept Analysis of Religiosity. Home Health Care Management & Practice, v. 19, n. 5, p. 350–355, 30 ago. 2007.
BLAKEMORE, S.J. Development of the social brain in adolescence. Journal of the Royal Society of Medicine, v. 105, n. 3, p. 111–116, 2012.
Referências
114 BORMANN, J. E. et al. Effects of spiritual mantram repetition on HIV outcomes: A randomized controlled trial. Journal of Behavioral Medicine, v. 29, n. 4, p. 359–376, 2006.
BORMANN, J. E. et al. Effects of faith/assurance on cortisol levels are enhanced by a spiritual mantram intervention in adults with HIV: A randomized trial. Journal of Psychosomatic Research, v. 66, n. 2, p. 161–171, 2009.
BRASIL. Resolução n° 466, de 12 de dezembro de 2012. Brasília, , 2012. Disponível em: <http://conselho.saude.gov.br/resolucoes/2012/Reso466.pdf>
BRASIL. Estatuto da criança e do adolescente e legislação correlata: Lei n. 8.069, de 13 de julho de 1990. 12. ed. Brasília: Câmara dos Deputados, 2014.
BREDLE, J. M. et al. Spiritual Well-Being as a Component of Health-Related Quality of Life: The Functional Assessment of Chronic Illness Therapy—Spiritual Well-Being Scale (FACIT-Sp). Religions, v. 2, n. 4, p. 77–94, 2011.
BREITBART, W. et al. Meaning-centered group psychotherapy for patients with advanced cancer: a pilot randomized controlled trial. Psychooncology, v. 19, n. 1, p. 21–28, 2010.
CALDEIRA, S. et al. Clinical Validation of the Nursing Diagnosis Spiritual Distress in Cancer Patients Undergoing Chemotherapy. International Journal of Nursing
Knowledge, v. 28, n. 1, p. 44–52, jan. 2017.
CAMEIRÃO, M. L.; VICENTE, S. G. Age-of-acquisition norms for a set of 1,749 Portuguese words. Behavior Research Methods, v. 42, n. 2, p. 474–480, 2010. CAMPBELL, D. T.; FISKE, D. W. Convergent and discriminant validation by the multitrait-multimethod matrix. Psychological Bulletin, v. 56, n. 2, p. 81–105, 1959. CANADA, A. L. et al. A 3-factor model for the FACIT-Sp. Psycho-Oncology, v. 17, n. 9, p. 908–916, set. 2008.
CHAMRATRITHIRONG, A. et al. Intergenerational transmission of religious beliefs and practices and the reduction of adolescent delinquency in urban Thailand. Journal of Adolescence, v. 36, n. 1, p. 79–89, 2013.
CHAN, E. K. H. Standards and Guidelines for Validation Practices: Development and Evaluation of Measurement Instruments. In: ZUMBO, B. D.; CHAN, E. K. H. (Eds.). . Validity and Validation in Social, Behavioral, and Health Sciences. Cham: Springer International Publishing, 2014. p. 9–24.
CLARKE, J. A critical view of how nursing has defined spirituality. Journal of Clinical Nursing, v. 18, n. 12, p. 1666–1673, 2009.
Referências
115 COLES, R. The Spiritual Life of Children. Boston: Mariner Books, 1990.
COLVER, A.; LONGWELL, S. New understanding of adolescent brain development: relevance to transitional healthcare for young people with long term conditions. Archives of Disease in Childhood, v. 98, n. 11, p. 902–907, 2013.
COOK, D. A.; BECKMAN, T. J. Current concepts in validity and reliability for
psychometric instruments: Theory and application. American Journal of Medicine, v. 119, n. 2, 2006.
COSTELLO, A. B.; OSBORNE, J. W. Best Practices in Exploratory Factor Analysis : Four Recommendations for Getting the Most From Your Analysis. Practical
Assessment, Research & Education, v. 10, p. 1–9, 2005.
COTTON, S. et al. Religious/Spiritual coping in adolescents with sickle cell disease: a pilot study. Journal of Pediatric Hematology/Oncology, v. 31, n. 5, p. 313–318, maio 2009.
COTTON, S. et al. Mind–body complementary alternative medicine use and quality of life in adolescents with inflammatory bowel disease. Inflammatory Bowel Diseases, v. 16, n. 3, p. 501–506, 2010.
COTTON, S. et al. Spirituality and religiosity in urban adolescents with Asthma. Journal of Religion and Health, v. 51, n. 1, p. 118–131, 2012.
COTTON, S.; MCGRADY, M. E.; ROSENTHAL, S. L. Measurement of Religiosity/Spirituality in Adolescent Health Outcomes Research: Trends and Recommendations. Journal of Religion and Health, v. 49, n. 4, p. 414–444, 2010. DANIEL, W. W. Applied nonparametric statistics. 2. ed. Boston: PWS- Kent Publishing, 1990.
DE JAGER MEEZENBROEK, E. et al. Measuring Spirituality as a Universal Human Experience: A Review of Spirituality Questionnaires. Journal of Religion and Health, v. 51, n. 2, p. 336–354, 2012.
DEON, K. C. et al. Análise psicométrica inicial da versão brasileira do DISABKIDS Atopic Dermatitis Module. Revista de Saúde Pública, v. 45, n. 6, p. 1072–1078, 2011a.
DEON, K. C. et al. Tradução e adaptação cultural para o Brasil do DISABKIDS® Atopic Dermatitis Module (ADM). Revista da Escola de Enfermagem da USP, v. 45, n. 2, p. 450–457, abr. 2011b.
Referências
116 DISABKIDS. Translation & Validation Procedure: Guidelines and Documentation Form. Hamburgo: The Disabkids Group Europe, 2004.
DOMOCMAT, M. C. L. Spirituality and Chronic Illness : A Concept Analysis. International Journal of Science and Research (IJSR), v. 3, n. 9, p. 1579–1583, 2014.
DOWNING, S. M. Validity: On the meaningful interpretation of assessment data. Medical Education, v. 37, n. 9, p. 830–837, 2003.
DRAPER, P. An integrative review of spiritual assessment: Implications for nursing management. Journal of Nursing Management, v. 20, n. 8, p. 970–980, 2012.
DRUTCHAS, A.; ANANDARAJAH, G. Spirituality and coping with chronic disease in pediatrics. Rhode Island medical journal (2013), v. 97, n. 3, p. 26–30, 2014.
DYESS, S. M. Faith: A concept analysis. Journal of Advanced Nursing, v. 67, n. 12, p. 2723–2731, 2011.
ECHEVARRÍA-GUANILO, M. E. et al. Cross-cultural adaptation of the Burns Specific Pain Anxiety Scale - BSPAS to be used with Brazilian burned patients. Revista Latino- Americana de Enfermagem, v. 14, n. 4, p. 526–533, 2006.
EDMONDSON, D. et al. Deconstructing spiritual well-being: existential well-being and HRQOL in cancer survivors. Psycho-Oncology, v. 17, n. 2, p. 161–169, 2008.
EDWARDS, A. et al. The understanding of spirituality and the potential role of spiritual care in end-of-life and palliative care: a meta-study of qualitative research. Palliative Medicine, v. 24, n. 8, p. 753–770, 2010.
EISER, C.; MORSE, R. Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment, v. 5, n. 4, p. 1–157, 2001.
ELKINS, M.; CAVENDISH, R. Developing a plan for pediatric spiritual care. Holistic Nursing Practice, v. 18, n. 4, p. 179–186, 2004.
ELLISON, C. W. Spiritual well-being: Conceptualization and measurement. Journal of Psychology and Theology, v. 11, n. 4, p. 330–340, 1983.
EPSTEIN, J.; SANTO, R. M.; GUILLEMIN, F. A review of guidelines for cross- cultural adaptation of questionnaires could not bring out a consensus. Journal of Clinical Epidemiology, v. 68, n. 4, p. 435–441, 2015.
FACIT. FACIT Administration and Scoring Guidelines. USA: FACIT.org, 2010. FAYERS, P. M.; MACHIN, D. Quality of Life: The Assessment, Analysis and
Referências
117
Interpretation of Patient-Reported Outcomes. 2. ed. Chichester, UK: John Wiley & Sons, Ltd, 2007.
FEDAGOLLI, C. Adaptação transcultural e validação do instrumento
DISABKIDS-37 para crianças e adolescentes brasileiros com condições crônicas: fase I. (Tese) Ribeirão Preto: Universidade de São Paulo, 2008.
FEGADOLLI, C. et al. Adaptação do módulo genérico DISABKIDS® para crianças e adolescentes brasileiros com condições crônicas. Revista Brasileira de Saúde
Materno Infantil, v. 10, n. 1, p. 95–105, 2010.
FERRER, M. et al. Validity and reliability of the St George’s Respiratory Questionnaire after adaptation to a different language and culture: the Spanish example. European Respiratory Journal, v. 9, n. 6, p. 1160–1166, 1996.
FISHER, J. The Four Domains Model: Connecting Spirituality, Health and Well-Being. Religions, v. 2, n. 4, p. 17–28, 2011.
FLASKERUD, J. H. Cultural Bias and Likert-Type Scales Revisited. Issues in Mental Health Nursing, v. 33, n. 2, p. 130–132, 2012.
FOWLER, J. W. Stages of Faith: The Psychology of Human Development and the Quest for Meaning. San Francisco: HarperOne, 1981.
FOWLER, J. W. Faith development theory and the postmodern problem of foundations. International Journal for the Psychology of Religion, v. 11, n. 3, p. 159–172, 2001.
FOWLER, J. W.; DELL, M. L. Stages of faith and identity: Birth to teens. Child and Adolescent Psychiatric Clinics of North America, v. 13, n. 1, p. 17–33, 2004.
FOWLER, J. W.; DELL, M. L. Stage of faith from infancy through adolescence:
reflections on three decades of faith development. In: ROEHLKEPARTAIN, C. E. C. et al. (Eds.). . The handbook of spiritual development in childhood and adolescence. 1th. ed. California: SAGE Publications, Inc., 2006. p. 34–45.
FURR, R. M.; BACHARACH, V. R. Psychometrics: An Introduction. 2nd. ed. Los Angeles: SAGE Publications, 2014.
GALIANA, L. et al. Cuestionarios de evaluación e intervención espiritual en cuidados paliativos: Una revisión crítica. Medicina Paliativa, v. 21, n. 2, p. 62–74, 2014. GAMEIRO, A. Introdução: sobre a Postilla Religiosa e Arte de Enfermeiros. In: Santiago, Padre Frei Diogo de - Postilla Religiosa, e Arte dos Enfermeiros... Lisboa: 1741. Fac-símile ed. Lisboa: Alcalá, 2005. p. VII–XXIV.
Referências
118 adolescent population. Psychotherapy Research, v. 23, n. 2, p. 232–246, 2013.
GUILLEMIN, F.; BOMBARDIER, C.; BEATON, D. Cross-cultural adaptation of health-related quality of life measures: literature review and proposed guidelines. J Clin Epidemiol, v. 46, n. 12, p. 1417–1432, 1993.
HARDESTY, D. M.; BEARDEN, W. O. The use of expert judges in scale development Implications for improving face validity of measures of unobservable constructs.
Journal of Business Research, v. 57, p. 98–107, 2004.
HART, D.; SCHNEIDER, D. Spiritual care for children with cancer. Seminars in Oncology Nursing, v. 13, n. 4, p. 263–270, 1997.
HAY, D.; NYE, R. The Spirit of the Child: Revised Edition. Revised ed ed. London: Jessica Kingsley Publishers, 2006.
HAYS, R. et al. User’s Guide for the Multitrait Analysis ProgramSanta MonicaRAND Corporation, 1988.
HERDMAN, H.; KAMITSURU, S. NANDA International Nursing Diagnoses: Definitions and Classification 2015-2017. 10th. ed. Oxford: Wiley Blackwell, 2014.
HEXEM, K. R. et al. How Parents of Children Receiving Pediatric Palliative Care Use Religion, Spirituality, or Life Philosophy in Tough Times. Journal of Palliative Medicine, v. 14, n. 1, p. 39–44, 2011.
HIGGINS, P. A.; STRAUB, A. J. Understanding the error of our ways: Mapping the concepts of validity and reliability. Nursing Outlook, v. 54, n. 1, p. 23–29, jan. 2006. HJEMDAL, O. et al. A New Scale for Adolescent Resilience: Grasping the Central Protective Resources Behind Healthy Development. Measurement and Evaluation in Counseling and Development, v. 39, n. July, p. 84–97, 2006.
INSTITUTO BRASILEIRO DE GEOGRAFIA E ESTATÍSTICA – IBGE. Censo demográfico, 2010 : características gerais da população, religião e pessoas com deficiência. Disponível em:
<https://ww2.ibge.gov.br/home/estatistica/populacao/censo2010/caracteristicas_religiao _deficiencia/default_caracteristicas_religiao_deficiencia.shtm>. Acesso em: 28 ago. 2014.
INSTITUTO NACIONAL DE CÂNCER – INCA. Tipos de Câncer: infantil. Disponível em:
<http://www.inca.gov.br/wps/wcm/connect/tiposdecancer/site/home/infantil>. Acesso em: 9 out. 2017.
JOHNSON, K. S. et al. Which domains of spirituality are associated with anxiety and depression in patients with advanced illness? Journal of General Internal Medicine,
Referências
119 v. 26, n. 7, p. 751–758, 2011.
JUNIPER, E. F. et al. Modification of the asthma quality of life questionnaire
(standardised) for patients 12 years and older. Health and quality of life outcomes, v. 3, n. 58, p. 1-6, 2005a.
JUNIPER, E. F. et al. Modification of the asthma quality of life questionnaire
(standardised) for patients 12 years and older. Health and Quality of Life Outcomes, v. 3, p. 58, 2005b.
KIMBERLIN, C. L.; WINTERSTEIN, A. G. Validity and reliability of measurement instruments used in research. American Journal of Health-System Pharmacy, v. 65, n. 23, p. 2276–2284, 2008.
KOENIG, H. G. Religion, Spirituality, and Health: The Research and Clinical Implications. ISRN Psychiatry, v. 2012, p. 1–33, 2012.
KOENIG, H. G.; KING, D. E.; CARSON, V. B. Handbook of religion and health. 2nd. ed. New York: Oxford University Press, 2012.
KOTTNER, J. et al. Guidelines for Reporting Reliability and Agreement Studies (GRRAS) were proposed. International Journal of Nursing Studies, v. 48, n. 6, p. 661–671, 2011.
KRISTJANSSON, E. A; DESROCHERS, A.; ZUMBO, B. Designer ’ s Corner
Translating and Adapting Research : A Guide for Practitioners. Measurement, v. 35, n. 2, p. 127–142, 2003.
KUPERMAN, V.; STADTHAGEN-GONZALEZ, H.; BRYSBAERT, M. Age-of- acquisition ratings for 30,000 English words. Behavior Research Methods, v. 44, n. 4, p. 978–990, 2012.
LAZENBY, J. M. On “spirituality,” “religion,” and “religions”: A concept analysis. Palliative and Supportive Care, v. 8, n. 4, p. 469–476, 2010.
LETHBORG, C. et al. The Role of Meaning in Advanced Cancer-Integrating the Constructs of Assumptive World, Sense of Coherence and Meaning-Based Coping. Journal of Psychosocial Oncology, v. 24, n. 1, p. 27–42, 2006.
LEWIS, S. et al. Spiritual well-being and its influence on fatigue in patients undergoing active cancer directed treatment: a correlational study. Journal of cancer research and therapeutics, v. 10, n. 3, p. 676–80, 2014.
LOBCHUK, M. M.; VORAUER, J. D. Family caregiver perspective-taking and accuracy in estimating cancer patient symptom experiences. Social Science and Medicine, v. 57, n. 12, p. 2379–2384, 2003.
Referências
120 LUCCHETTI, G. et al. Validation of the Portuguese Version of the Functional
Assessment of Chronic Illness Therapy–Spiritual Well-Being Scale (FACIT-Sp 12) Among Brazilian Psychiatric Inpatients. Journal of Religion and Health, v. 54, n. 1, p. 112–121, 2013.
LUCCHETTI, G.; LUCCHETTI, A. L. G.; VALLADA, H. Measuring spirituality and religiosity in clinical research: a systematic review of instruments available in the Portuguese language. Sao Paulo Medical Journal, v. 131, n. 2, p. 112–122, 2013. LUM, A. et al. Understanding the school experiences of children and adolescents with serious chronic illness: a systematic meta-review. Child: Care, Health and
Development, v. 43, n. 5, p. 645–662, 2017.
LYNN, M. R. Determination and quantification of content validity. Nursing Research, v. 35, n. 6, p. 382–386, 1986.
MANEESRIWONGUL, W.; DIXON, J. K. Instrument translation process: A methods review. Journal of Advanced Nursing, v. 48, n. 2, p. 175–186, 2004.
MARTINEZ, E. Z. et al. Notes on the Portuguese-language version of the Spiritual Well-Being Scale | Notas sobre a versão em língua Portuguesa da Escala de Bem-Estar Espiritual. Jornal Brasileiro de Psiquiatria, v. 62, n. 1, 2013.
MARTONI, A. A. et al. Spiritual well-being of Italian advanced cancer patients in the home palliative care setting. European Journal of Cancer Care, n. February, p. 1–9, 2017.
MCCOACH, D. B.; GABLE, R. K.; MADURA, J. P. Instrument Development in the Affective Domain. 3 edition ed. New York, NY: Springer New York, 2013.
MCSHERRY, W. The Meaning of Spirituality and Spiritual Care within Nursing and Health Care Practice. 1st. ed. London: Quasy Book, 2008.
MESSICK, S. Validity of Phsychological Assessment: Validation of Inferences from Persons’ Responses and Performances as Scientific Inquirey into Score Meaning. Research Report, v. 45, n. September 1994, p. 1–28, 1994.
MONOD, S. et al. Instruments measuring spirituality in clinical research: A systematic review. Journal of General Internal Medicine, v. 26, n. 11, p. 1345–1357, 2011. MOREIRA-ALMEIDA, A. et al. Envolvimento religioso e fatores sociodemográficos: resultados de um levantamento nacional no Brasil. Archives of Clinical Psychiatry (São Paulo), v. 37, n. 1, p. 12–15, 2010.
MURPHY, P. E. et al. An examination of the 3-factor model and structural invariance across racial/ethnic groups for the FACIT-Sp: A report from the American Cancer Society’s Study of Cancer Survivors-II (SCS-II). Psycho-Oncology, v. 19, n. 3, p. 264–
Referências
121 272, 2010.
NAGASE, M. Does a Multi-Dimensional Concept of Health Include Spirituality? Analysis of Japan Health Science Council’s Discussions on WHO’s “Definition of Health” (1998). International Journal of Applied Sociology, v. 2, n. 6, p. 71–77, 2012.
NASCIMENTO, L. C. et al. Atenção às necessidades espirituais na prática clínica de enfermeiros. Aquichan, v. 16, n. 2, p. 179-192, 2016a.
NASCIMENTO, L. C. et al. Spiritual Care: The Nurses’ Experiences in the Pediatric Intensive Care Unit. Religions, v. 7, n. 27, p. 1-11, 2016b.
NASCIMENTO, L. C. et al. Spirituality and religiosity in the perspectives of nurses. Texto & Contexto-Enfermagem, v. 22, n. 1, p. 52–60, 2013.
NEUMAN, M. E. Addressing Children’s Beliefs Through Fowler’s Stages of Faith. Journal of Pediatric Nursing, v. 26, n. 1, p. 44–50, 2011.
NEWBERG, A. B.; NEWBERG, S. K. A neuropsychological pespective on spiritual development. In: ROEHLKEPARTAIN, C. E. C. et al. (Eds.). . The handbook of spiritual development in childhood and adolescence. 1th. ed. California: SAGE Publications, Inc., 2006. p. 183–196.
NOGUCHI, W. et al. Reliability and validity of the Functional Assessment of Chronic Illness Therapy-Spiritual (FACIT-Sp) for Japanese patients with cancer. Supportive Care in Cancer, v. 12, n. 4, p. 240–245, 2004.
PADILLA, J.-L.; BENÍTEZ, I. Validity evidence based on response processes. Psicothema, v. 26, n. 1, p. 136–44, 2014.
PARKER, S. Research in Fowler’s faith development theory: A review article. Review of Religious Research, v. 51, n. 3, p. 233–252, 2010.
PASQUALI, L. Psychometrics. Revista da Escola de Enfermagem da USP, v. 43, n. spe, p. 992–999, 2009.
PATTERSON, C. et al. Diabetes in the young – a global view and worldwide estimates of numbers of children with type 1 diabetes. Diabetes Research and Clinical Practice, v. 103, n. 2, p. 161–175, 2014.
PEREIRA, F.; SANTOS, C. Adaptação cultural da Functional Assessment for Chronic Illness Therapy-spriritual well being. Cadernos de Saúde, v. 4, n. 2, p. 37–45, 2011. PETEET, J. R.; BALBONI, M. J. Spirituality and religion in oncology. CA: A Cancer Journal for Clinicians, v. 63, n. 4, p. 280–289, 2013.
Referências
122 PETERMAN, A. H. et al. Measuring spiritual well-being in people with cancer: The functional assessment of chronic illness therapy—spiritual well-being scale (FACIT- Sp). Annals of Behavioral Medicine, v. 24, n. 1, p. 49–58, 2002.
PETERMAN, A. H. et al. Measuring meaning and peace with the FACIT–Spiritual Well-Being Scale: Distinction without a difference? Psychological Assessment, v. 26, n. 1, p. 127–137, 2014.
PFUND, R. Review : Nurturing a child’s spirituality. Journal of Child Health Care, v. 4, n. 4, p. 143–148, 2000.
PICKARD, A. S.; KNIGHT, S. J. Proxy Evaluation of Health-Related Quality of Life: A Conceptual Framework for Understanding Multiple Proxy Perspectives. Medical care, v. 43, n. 5, p. 493–499, maio 2005.
PINQUART, M.; SHEN, Y. Behavior problems in children and adolescents with chronic physical illness: A meta-analysis. Journal of pediatric psychology, v. 36, n. 4, p. 375–384, 2011.
PINQUART, M.; TEUBERT, D. Academic, Physical, and Social Functioning of Children and Adolescents With Chronic Physical Illness: A Meta-analysis. Journal of