Liver Patients Association
Liver Patients Association
Vision and Activities
Vision and Activities
Emília Rodrigues
Emília Rodrigues
SOS Hepatites Portugal
SOS Hepatites Portugal
President
President
VAL NETO
19/08/1954 -12/12/2005
First “Post” (08/07/2004) in the Blog to support
patients with hepatitis C and their Families.
2005 – 1st. Direction
21 April 2005
Objectives
•
Divulgation of viral hepatitis in the portuguese population
Divulgation of viral hepatitis in the portuguese population
•
Divulgation among health professionals
•
Risk factors, forms of transmission, prevention and treatment
•
Support patients and families
•
Support patients and families
•
Programmes and activities of information
Objectives
•
Edition of publications
•
Organize meetings between patients
Organize meetings between patients
•
Promote the formation of psychologists with expertise in
chronic liver disease
•
Promote the formation of nurses specialized in palliative care
p
p
Office
SITE
www.soshepatites.org.pt/
TV
awareness, information
2005‐05‐19 – RTP1
2005‐09‐28 – RTP1
2006 – TVI
TV
2008/05/19 ‐ TVI
SOCIEDADE CIVIL
Newspapers and magazines
2006‐05‐17 ‐ 24 Horas 06‐05‐17 – Jornal Expresso 06‐05‐17 – Jornal Destak 06‐05‐17 ‐ CM 2005‐03‐16 ‐ DN 06‐05‐17 ‐ Diário Económico 06‐05‐17 ‐ DNNewspapers and magazines
06‐05‐17 – Jornal Metro (Capa) 06‐05‐17 ‐ Metro 06‐05‐17 – Jornal “A União” (Leiria)
Newspapers and magazines
2008/08/24
News in scientific/medical
societies
“Join Ventures”
Instituto Nacional de Resposta a Incidentes de Segurança InformáticaDelegations
CHAVES
Coordinator
Anabela TaveiraPsychologists
Nurse
Lawyer
Communication
Delegations
CHAVES
Other places
Coimbra, Faro‐Olhão, Santarém, Oporto
VIPS
2006 VENDA PASCOA – C.C.COLOMBO 2006SIC ‐ CONTACTO CORRIDA DAS “ESTRELAS”2007
José Pedro Reis Karen Motzenbacher José Pedro Reis
National Meetings
International Meetings
(ELPA Symposium) (ELPA Symposium)Our Targests
•
War veterans
S
t
f i
bl
d d
•
Surgery, transfusion, blood donors
•
Miscarriage
•
Elevated ALT, GGT
•
Piercings, tattoos
•
Haemophiliacs
•
Drug addicts
•
Prisoners
•
HIV
Awareness
FIL – APRESENTAÇÃO MASCOTES FEIRA DA SAÚDE ‐ Porto
Karen Matzenbacker José Pedro Reis
2007
LANÇAMENTO LIVRO – “HISTÓRIAS SEM ROSTO” CARRIS
Awareness
World Day ‐ Hepatites
2009
Awareness
Porto – Casa da Música
Chaves – Castelo Coimbra – Câmara
PORTO ‐ FOZ LISBOA – BAIXA POMBALINA
Awareness
PORTO ‐ FOZ LISBOA – BAIXA POMBALINA
HOMENAGEM PROF. DR. RUI TATO MARINHO 2010 – DIA MUNDIAL DAS HEPATITES – FLASH MOVIE
Colaboration with other professionals
2005/03/16
I WORKSHOP – APRESENTAÇÃO SOS (SINTRA)
Michel Bonjour – Val Neto – Prof. Dr. Rui Tato Marinho – Dr. Luis Tavares Dra. Maria José Campos Representante Câmara de Sintra 2007/09/29 II WORKSHOP ‐ COIMBRA 2008/05/14 WORKSHOP AUDITÓRIO DE CHAVES
Colaboration with other professionals
Enf.ª. Elza Alpalhão Dra. Isabel Gonçalves Enf.ª. Cristina Imaginário Anabela Taveira – Dr. Presa Ramos
